Some did 10,a few did 20 but how many did a 30 year comparison? Me and my Bro Joshua After Boot Camp In 89’ in Haiku in Pic,Josh and I in Texas at Ma n’ Pa’s Crib 30 years later.. Still Handsome and ready for another 30..lol 🤔 #siblings#babybro#downsyndrome#mybestfriend#blood#fuckcancer He’s only got 1 Nut or Testicle also.. When he was in his teens he had the treatment and we are still here.. Just like his nephew Andrew,my middle one.. Cancer Free but 1 testicle also.. all I can say or text is make every second count nothing is guaranteed only promised so make your happiness your reality.. I am🙏🏽 #ohana#1ove#hoops#bros#30yearchallenge#808 to #361#143#420#aloha
Day 8 Post op
Hari nie seriously longgg longg dayy. Ateh start stabil pukul 12 lebih mlm td. Dia dah boleh lelap. Then its time to taking care of myself. Dah seminggu lebih batuk teruk. Nak tinggal ateh tak smpai ati. So turun pegi neb kejap kat kecemasan. Macam biasa 1x neb mana cukup. Doc bg dua kali then bg sebeban ubat. Ntah apa kes kali nie lepas neb rasa berpusing dunia. Jalan pon macam orang mabuk siap pakej muntah 3x. Dah okay sikit then balik wad balik.
Another waves of pain datang. ateh mgadu sakit so sambung urut kepala. Post neb badan akan rasa penat. Teman ateh smpai pukul 4 badan dah start bg hint nak self shutdown. Tambah pulak makan ubat selsema n batuk mmg power ah ngantok dia. So baring jap kat lantai. Letak je pala terus hanyut.
Tersedar jam 5.30am. Ateh nanges sakit. Rupanya doc masuk kan darah. Urut2 badan dia with hope can ease if not much, some of her pain. Masuk jam 7 kemas2 tempat tikar. Tukar kain ateh. Pegang tangan ateh. Tgk ateh lena dengan angah hanyut. Siyes tak sedar apa level tahap breakfast datang pon tak sedar. Mmg totally shutdown.
Pukul 9.30 baru rasa jadi manusia balik. Bg ateh air. Urut2 sikit2. Tunggu doc tak datang then turun pegi beli makanan ateh. Sekali rupanya masa turun tu doc datang pulak.
Alhamdulillah. Tengah hari dan petang ateh sakit but not too much. Cover dgn cx dan df. Boleh tdo. So angah pon join skali sbb still lalok dgn ubat. Alhamdulillah. Allah ease everything for us. #kisahateh#atehisfighter#downsyndrome
Игорь Игоревич Серегин обучает уже 4-го из моих детей. Бесплатно. Только на нем держится зимой хоккей, а летом - теннис в нашем дворе. Надеюсь, что и Рамиль научится. #синдромдауна#downsindrome#downsyndrome
In 1917, a small group met on March 15-18th in Clifton Springs, New York, and established The National Society for the Promotion of Occupational Therapy. In the United States, we celebrate this as the official start of our profession!
I can’t get over how long Myahs hair has got since she was one! Its grown so fast! I can finally put it in two french braid pig tails in her hair and i am obsessed!!! I can’t get over how cute they look and those little bows make them perfect! .
Happy Easter! We’re back!
Wyatt has been recovering from being really sick so I’ve been caught up in life 🙈
Anyways I wanted to tell you all about therapies! Now that Wyatt is 9 months old we are doing developmental therapy & physical therapy once a week... right now we’re still working on sitting up (he can sit for a few minutes unassisted but falls back after) along with crawling and getting on the move 🚼
Right now we’re taking a break from occupational but that will resume in the next month or 2! It also won’t be long before we start speech so we can communicate with him better 💛
We are so blessed so have such great therapists, they all love him so much and want him to do his best 🥰
This beautiful human is the reason for all those bunnies and fundraising done by A&Y for @skdownsyndromesociety . my Dally filled my life with love, laughter and mischief! He left us over 20 years ago today. His life was much too short for those of us blessed to know and love him but his impact lives on still. I miss you and I love you, Dally. 😘🙏 #myreason#downsyndrome#handmade#saskatchewan
Two part post. Too long. 🤷♀️ If the memory serves me right, Lila Kate’s 3rd birthday was on Easter Sunday and just a few days before she had an outstanding ❤️ doctor apt. Lila was high functioning with the extra chromosomes, but the congenital (?) heart issues was too much for the pneumonia to handle the next year. 😭
And here I sit, mixed with emotions. I’m still reflecting on Easter, for it’s more than only a day. It’s the rejoiced hope and awaited joy that Jesus gives to me as His child; to you also if you are His. Jesus death and resurrection made it possible for “everyone who calls on the Lord to be saved.” When I’m left to my own, I’m very tempted to wallow around in the heart jerking, tear flowing, and profound sadness of the physical absence of Lila Kate. And sometimes I do, I have to because in a way it’s heathy. But too I realize it’s also important to continue with this life on Earth. As our pastor tells me, it’s about balance. There’s has to be balance between all types of aspects in life like; being dependent upon God while noting that God didn’t make us to be independent of each other. #easter#reflect#cross#sadness#grief#hope#joy#write#share#romans#downsyndrome#miss you #3rdbirthday#livingtheinbetween