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#t21

Posts tagged as #t21 on Instagram

337,811 Posts

"Vamos descobrir o mundo juntos minha Bebé! Quero aprender com teu pequeno grande coração "

#abelladeju #sindromededown #downsyndrome #t21 #sd #recdown #cromossomo21
I remember feeling constantly #drained and holding my sweet #newborn and just sobbing because I wasn't sure I’d be able to pump enough #breastmilk to feed him. I felt like a failure and that somehow I was adding to the struggles he already faced with an extra chromosome. (#momguilt, anyone?)
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I remember daily calls to my husband and mom where I repeatedly cried “I can't do this.” I was #tired and #addicted to #sugar; surviving on #caffeine and unable to break the cycle of #headaches and #naps. It took me hours to fall asleep at night and then I would wake up multiple times for no reason. I chalked it up to #stress, a post college diagnosis of #adrenalfatigue, and a prenatal diagnosis of #hypothyroidism. Introversion hovered and I thought #exhaustion and #meltdowns were just normal for #youngmoms.
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I was a #specialneedsmom … and I was #surviving (I thought). But my entire world revolved around living for my son's naps so that I could sleep too. Except that most of the time I couldn’t. I worked from home after my maternity leave ended to help make ends meet. All the #shoestringbudget #mamas out there KNOW what I'm talking about. I was happy, but secretly desperate to feel better and constantly worried about my milk supply and growing physical and emotional turmoil.
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Who knew that something as simple as gut health could #transform EVERYTHING in my life?? Not only is my extroverted self back, but my meltdowns, sugar #cravings, #sleeplessness, exhaustion, and headaches are a thing of the past. I love waking up alert for myself, my #family, and my friends. And I'm grateful that our shoestring budget has a bit more padding these days.
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There were many days I felt really alone. Even with a wonderful support network surrounding me. But if you or someone you know is silently suffering, know this: you are NOT alone and that there IS another way. If you're ready to take a risk and experience what #healthy really feels like, I have the most amazing gift for you. Check out my stories, drop me a comment, or DM me. Because at the very least, I want to know how I can pray for you and serve and encourage you in your #journey. ♥︎
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#community #motherhood #momlife #t21
How can it be possible that this sweet baby girl is six months old today and is still able to wear her adorable @rufflebutts outfit that we brought her home in. She weighs 11.1 pounds and loves bananas, apples and pears.  She loves doing her physical therapy exercises every day, is trying to roll over,  has much stronger head/neck support and is starting giggle a little. Oh, and she loves trying to “pet” Maggie the cat when she’s near by. I think Maggie has finally met her match. It sure is going to be interesting once Emma is up and running.  We sure do love this sweet girl and the journey she is taking us all on. 💛💙 #dailydoseofemmahelton #nothingdownaboutit #t21 #rockstar #chd #chdwarrior #1in100 #thisisdownsyndrome #rufflebutts #sixmonthsold #miraclebaby
February is for lovers 🥰... and Congenital Heart Defect Awareness! 💫
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This year, about 2,500 kids in the U.S. will be born with Down syndrome and a congenital heart defect, many requiring surgery!
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That’s why for the entire month of February, we’ve partnered with the coolest plant shop on the planet, @brsucculentco, to raise money for a local cutie, Nathaniel, who just had open heart surgery to repair a heart condition known as Complete AV Defect.
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Every donation to #SuccaForHearts will go directly to help Nathaniel’s family defer some of the overwhelming expense of open heart surgery. 💔
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TO DONATE NOW: Go to BRSucculentCo.com or visit their shop on Highland Road. Buy a super cool succulent 🌵, donate to an awesome cause, and help save a heart! 🙌🏼💘
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#EvieLove #DownSyndrome #TheLuckyFew #NothingDownAboutIt #T21 #CTFOB #Trisomy21 #DownSyndromeAwareness #SaveDownSyndrome #ChangingTheFaceOfBeauty #DownSyndromeRocks #DSDN #MoreAlikeThanDifferent #UpSyndrome #DownSyndromeLove #LIFEisbetterwithyou
Evie got to meet her Great great granny Mary today, yes you read that right her great great granny ❤️ there's very few people out there that can say that 😍 
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Today was one of those days that started off so well & then went rapidly down hill, having such a tough pregnancy & trying to look after a one and a half year old is not easy, if anyone tells you it is they are lying 😂 I struggle just like everyone else. Some days are full of fun & laughter, others tears & tantrums, to think in a couple more months we will be adding to the chaos 🙈 I'm so excited to meet my little girl for Evie to meet her forever friend & to watch my beautiful girls grow together ❤️ #3amigos
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#morealikethandifferent #downsyndrome #upsyndrome #downsyndromeawareness #downsyndromelove #changingthefaceofbeauty #candidchildhood #realmotherhood #theluckyfew #familyphotography photography #parenting #motherhood #wouldntchangeathing #lifeisbetterwithyou #trisomy21 #t21 #homiewithanextrachromie #irishparentingblogger #inclusion  #downrightperfect #differentisbeautiful #irishmammy #irishblogger #specialneedsmom #dontbesorry #downsyndromelove #discoverunder10k #blog #family
Am 21.3. ist #weltdownsyndromtag⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Auch heute habe ich wie jeden Mittwoch ein bezauberndes Poster für Euch. Danke an @lidaw1983⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Diese Poster sollen Vorurteile abbauen und Ängste nehmen.⠀⠀⠀⠀⠀⠀⠀⠀⠀
Es gibt keine Garantie, dass ein Kind ohne Behinderung zur Welt kommt. Ja, Down Syndrom kann man leicht finden und wird daher von den Ärzten gerne als Schreckensbild in der Schwangerschaft gezeichnet.⠀⠀⠀⠀⠀⠀⠀⠀⠀
Es gibt jedoch viel, viel Schlimmeres das ein Kind als Päckchen mitbringen kann, nur das kann man (noch) nicht finden, also sucht man weiter nach dem Down Syndrom und behauptet die Eltern müssten sich fürchten vor der Aufgabe mit "so einem" Kind.⠀⠀⠀⠀⠀⠀⠀⠀⠀
90% werden geschätzt abgetrieben.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Und ja, ich hatte auch richtig Schiss, unbegründet, weil ich nichts wusste, obwohl ich schon viele Berührungspunkte hatte. Mein Leben wurde jedoch besser und bunter.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Und wo wir gerade bei Farbe sind, morgen habe ich etwas ganz besonderes für euch, schaut am besten ab 6:00 bei mir vorbei, damit ihr noch die volle Auswahl habt an .... in bunt und fröhlich. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Was hat Farbe in dein Leben gebracht, oder fehlt sie noch?⠀⠀⠀⠀⠀⠀⠀⠀⠀
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#downsyndrome #wdsd #downsyndrom #downsyndromegirl  #wdsd2019 #postermittwoch #wdsdposter #inklusion #worlddownsyndromeday #trisomie21 #t21 #theluckyfew #lebenmitbehindertemkind #elternblogger
Fez um ano da minha primeira cirurgia no coração. Passei uns momentos ruins no meu pós operatório, mas hoje estou ótima,  aprontando muito.🤣 Obrigada aos amigos, familiares, às igrejas e pessoas que não conheço, que oraram por mim. Obrigada a papai do céu, por me permitir estar aqui. Eu quase fui morar com Ele, mas Ele disse que minha missão não tinha terminado. Obrigada a todos que me ajudaram, não só com orações, mas de várias formas que podiam. Muito, muito, muito obrigada. .
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#gratidao🙏 #souummilagre #cirugiaDSAVT #tudosobcontroledeDeus #ninguemmesegura #souforte #guerreira #Deussabedetudo #DSAVT #vencemosoinimigo #sigamoslutando #cromossomo21 #sindromededown #trissomia21 #t21 #cromossomodoamor #cromossomo #guerreiradown #princesadown #babydown #amormaiornaoha #soumaisquevencedora #gratidaoaDeus
Hola holaa 😊 seguimos de vacaciones jiji hoy celebrando el cumple de mi Super Papito 👦❤️.
Les cuento que estoy por primera vez en estos lugares hermosos... Y estoy encantada 🤗. #sindromededown #t21 #downsyndrome #downchile #downsinmitos #trisomia21 #nadaesimposible 💪🌺
Y este es uno de los logros que más hemos celebrado en casa estos últimos días. Pazi dando sus pasitos 😍 para nosotros es una emoción muy linda pues vemos que el trabajo de terapia y el día a día valen la pena en cada pasito que da. Ella nos enamora 😍💕❤️
#sindromededown #DownSyndrome #t21 #cromosomaextra #MaryPaz #PasiLove #Marypaz_Down_is_love
#PaniSD
#bebemodelo
#Babymodel
#sindromededownEcuador
♥️🙌🙌🙌 Thank you!!! #Repost @max_and_jude with @get_repost
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March 21st is our 5th annual World Down Syndrome Day 5k - Jogging for Max and Jude. We are so excited to introduce two families our race benefits. The Petersen family brought their son, Cove, home on Valentine’s Day. The Peters family are anxiously waiting to travel to China to bring their son, Davy, home. The exciting thing is that by registering for our 5k, you can be a part of Cove and Davy’s adoption story. Local runners can come out and run with Max and Jude on March 21st. ✨Our farway friends can register as a phantom runner. You will be mailed a race tee and finisher medal so that you can walk/run in your hometown and raise awareness that we are all More Alike Than Different.✨
Link to register in bio. @max_and_jude #follow .
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#bringingdavyhome #helpbringdavyhome #downsyndromeadoption 
#downsyndrome 
#nothingdownaboutit 
#t21 #joggingformaxandjude #adoption #downsyndromeawareness #shouttheirworth #5k #runforacause #worlddownsyndromeday #wdsd2019 #wdsd #theluckyfew #adoptionjourney #fundraiser #running #notbroken #instagram
For those of you who have been following @learningfromluke for a while know my deep love for getting down and messy with my kids. .
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The myriad of benefits which are associated with messy play - fostering imagination, curiosity and exploration - to name but a few, and the quality time it affords me with my children are only some of the reasons why I am such a fan. .
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It would only make sense then that I would include the beautiful sensory recipe book from @stickyfingers.sensoryplay on the @learningfromluke_shop .
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This beautifully put together book is not only full to the brim with amazing sensory activities and recipes but it is accompanied by easy tips and tricks and captivating images too. .
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Shop this beauty online now 💚

#downsyndrome 
#downsyndromeawareness 
#nothingdownaboutit 
#homieswithextrachromies
#t21
#theluckyfew
#raisingdurbs
#Handeyecoordination
#storytelling
#imagination
#Languageenrichment
#Finemotordevelopment 
#Creativeskills
#learningthroughplay
#sensory
#stickyfingers 
#onlineshopping
#messyplay
#shoppingwithacause
For those of you who have been following @learningfromluke for a while know my deep love for getting down and messy with my kids. .
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The myriad of benefits which are associated with messy play - fostering imagination, curiosity and exploration - to name but a few, and the quality time it affords me with my children are only some of the reasons why I am such a fan. .
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It would only make sense then that I would include the beautiful sensory recipe book from @stickyfingers.sensoryplay on the @learningfromluke_shop .
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This beautifully put together book is not only full to the brim with amazing sensory activities and recipes but it is accompanied by easy tips and tricks and captivating images too. .
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Shop this beauty online now 💚

#downsyndrome 
#downsyndromeawareness 
#nothingdownaboutit 
#homieswithextrachromies
#t21
#theluckyfew
#raisingdurbs
#Handeyecoordination
#storytelling
#imagination
#Languageenrichment
#Finemotordevelopment 
#Creativeskills
#learningthroughplay
#sensory
#stickyfingers 
#onlineshopping
#messyplay
#shoppingwithacause
Este libro es NECESARIO.
Es la historia de Giovanni, un niño con Síndrome de Down, y su familia.
Lo más bonito de esta historia es que está escrita por Giacomo, su hermano, que tenía 5 años cuando Giovanni nació. Es él el que nos cuenta cómo cambió la familia, cómo se adaptaron, las dificultades, las dudas, las alegrías, los miedos, el orgullo, los prejuicios, la familia, la amistad... Son muchos los temas que trata Giacomo en este libro, todos desde su punto de vista como adolescente. Con sencillez pero a la vez con profundidad nos acerca a Giovanni, al Síndrome de Down, a una realidad a la que hay que darle más visibilidad todavía, de la que hay que hablar todo lo posible.
El título en español es Mi hermano persigue dinosaurios y está publicado por Nube de tinta.
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#miofratellorincorreidinosauri #giacomomazzariol #sindromededown #cromosomaextra #t21 #changethefaceofbeauty #downsindrome #mihermanopersiguedinosaurios #leer #yoleo #megustaleer #leeresvivir #leoycomparto #leoyrecomiendo #queleer #instalibro #book #booklover #bookstagram #lovereading #readinglover #bookish #bookishgirl #bookworm #instabook #books #bookaddict #igreads #bookphoto #toberead
Моя реабилитация в центре идёт полным ходом. Уже закончил курс массажа, логопеда. Остались психолог, лфк с костюмом Атлант, ботиночки Корвит и спелеокамера. После всех процедур я традиционно пешком иду до столовой кушать, а потом назад к выходу. Иду - это громко сказано, это мама со согнутой спиной меня ведёт за две руки по ступеням и по коридорам, я и ругаюсь, и запрокидываю голову, и пытаюсь слинять, но несмотря на мамину больную силу, ее желание накачать мне ноги сильнее и перевешивает тот факт, что после такого прохода разогнуться она уже может с трудом. На фото я прошёл полпути и стою довольный - передышка. Далее в карусели я - супер диджей в кабинете психолога, а также играю солью в спелеокамере. Ещё недельку продержаться и курс закончится. Результат один виден точно - я стал покрепче и больше играю дома стоя, ходить стал много вдоль опоры и начал стоять немножко сам без опоры, а утром сегодня сделал все свои дела на горшке и сам с него встал и плюх на маму. 
#синдромдауна #трисомия21 #развитиедетей #особенныйребенок #солнечныймальчик #солнечныйИларион #детисолнца #downsyndrome #солнечныедети #особыедети #особенныедети #синдромдаунанеприговор #t21 #невозможноевозможно #разрушаюстереотипы #даунсайтап #синдромлюбви #trisomie21 #занятия #развитие #текстильщики #рцтекстильщики
1歳からは、離乳食別でpostします🙌
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2019.2.20
朝ごはん(pic.2)
バナナごはんの白玉ミルク風☞200g完食✨
アスパラガスのポタージュ☞60g
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昼ごはん(外食)
鳥とごぼうの炊き込みご飯(BF)☞100g完食✨
バナナ☞1/2本完食✨
麦茶☞20ml
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おやつ
生乳100%ヨーグルトとキウイ☞40g完食✨
赤ちゃんせんべい(小松菜)☞1本完食✨
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夜ごはん
牛肉入りオムライス☞160g
ココア蒸しパンケーキ☞50g完食✨
(水切りヨーグルト、いちご)
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#ダウン症
#ダウン症ガール
#両大血管右室起始症 
#downsyndrome
#downsyndromelove 
#downsyndromebaby 
#21trisomy 
#21t
#21トリソミー 
#t21 
#trisomy21 
#todayisbirthday 
#1yearsoldbaby 
#ダウン症の離乳食中期 
#もぐもぐ期 
#離乳食 
#離乳食中期 
#お誕生日ごはん 
#birthdaydinner 
#babyfood 
#japanesebaby
Some Hunter smiles to share with you this morning 😍
Kids just want to play. But for little ones who have #hypotonia, a lack of stability, alignment and confidence may hold them back. You can help. If you’re seeing mobility challenges or delays, ask your doctor or #physicaltherapist about Surestep SMOs.
Look at this big girl sitting up! 😍 I have been in recovery mode over here since having my baby. The delivery was pretty rough from problems with my epidural, to heart rate and breathing issues for me, and ending with delivering natural (which I never wanted to do) and TEARING quite a bit 😭. I can finally sit in a chair for a little while now, which has been nice, and I am walking around better too. But the hardest thing has been not being able to pick up Miss Lucy girl. I have been missing her snuggles and she has been reaching out for me to hold her constantly. But hopefully by next week I’ll be ok to lift her again! Sweet girl! We have also had to make a few doctor apts for Lucy since the baby came. The one from this picture was to check on her g-tube as she’s been having a hard time with it lately. Sure enough she has an infection, so we are starting on an antibiotic, and she also has some other issues that we will take care of at her next apt. There’s never a dull moment over here at our house! Happy Wednesday everyone! #downsyndrome #theluckyfew .
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#downsyndromeawareness #joubertsyndrome #13qdeletion #nothingdownaboutit #gtube #tubie #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #dsdn #upsyndrome #hardofhearing #bilateralhearingloss #specialneeds #downsyndromediagnosis #sharingdownsyndrome #sharingdsaz
Happy Wednesday everyone! Request brochures for your medical offices that provide information and resources about Down syndrome, Turner syndrome, Jacobsen syndrome, prenatal screening/testing, and delivering a prenatal or postnatal diagnosis at https://resources.lettercase.org .
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#patientresources #educational #medicalofficeresources #medicalpractice #medicalcommunity #downsyndrome #t21 #turnersyndrome #jacobsensyndrome #prenataltesting #prenatal #prenatalscreening #prenataldiagnosis #postnataldiagnosis #deliveringdiagnosis #genetics #geneticconditions
Soninho mais gostoso😍😍🤗#aliceprincesinha #cromossomodoamor😍 #T21#sindromededown
Hola amigos! estoy en una playa muy preciosa con mis papás y unos tíos, ayer estuve con mi abuela, ella vivía en Puerto Montt pero se irá a vivir a Santiago por el trabajo, aún no entiendo mucho, quizás la voy a extrañar porque igual estábamos casi todos los fines de semanas juntas🤔. Pero mi papá ya le dijo a mi mamá que la iremos a ver para que me siga viendo crecer y regaloneandome como lo hace siempre🙈.
Qué tengan una buena semana!❤️
#sindromededown #downup #downsinmitos #downsyndrome #t21 #amor #maicolpue #osorno #chile
When chomping on the Lucky Few teether makes you smile! 😍
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Taking away teething pain, bringing smiles.. doing our part to bring awareness to the Down Syndrome community. Win, Win, Win!!
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#morealikethandifferent #nothingdownabouther #nothingdownaboutit #downsyndrome #triplearrow #theluckyfew #theluckyfewcrew #blueyellow #luckylittlegirl #downsyndromeawareness #Ds #dsdn #t21
#FonoDown e a indicação de livro!
Acredite, este super instrumento de estimulação custou apenas R$10,00 na feira de livros do shopping. 365 histórias para ler e sonhar Ed. Ciranda Cultural. 
São 365 pequenas histórias, uma para cada dia do ano, assim a criança é sempre surpreendida com uma história diferente a cada semana. 
Claro que eu já escolhi alguns textos (datas) para trabalhar uns objetivos específicos, mas de um modo geral o livro pode ser usado no treino e melhora da leitura, trabalhar sobrearticulação, projeção vocal, feedback auditivo em conjunto com o sussurrofone, atenção e concentração, interpretação da história... Fga. Michele Lemos #T21 #fonoaudiologia #síndromededown #downsyndrome #linguagem #fonoterapiainfantil #leitura
⏳О скоротечности бытия... Знаю, эта мысль более, чем банальна. Но неужели я одна не успеваю заметить, когда пролетело 🔜 так много времени 🕦?
Как-то незаметно из жизни ушли частые встречи с подругами. Хотя нет, я ж вот, прям недавно с одногруппницами встречалась. Совсем недавно. Правда, тогда я была еще беременна. Колей. И прошло пять (!!!!) лет. Пять лет, а я и не заметила... И подруг становится всё меньше. Всё меньше тех, кто на самом деле готов приехать в гости или увидеться, когда у меня всегда два 🚃🚃 прицепа. А новая офигенная юбка 👗обречена на жизнь в шкафу. Потому что носить её не с чем. И некуда 
Мне нравится всё то, что у меня сейчас. Мои лучшие друзья - это #mylovelyfamily , я уже и не помню, что раньше было иначе, но не могу понять, куда бежит время. Вон на фото 👆#летоalles (а за фото кому спасибо? Прааааавильно, @elena_ulivanova ), а скоро уже новое лето 
Эй, остановись, мгновенье! .
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#николайартемович #сын #малышкаАнисия #дочур #t21 #синдромдаунанеприговор #маминыбудни #счастьевотоно #люблюлюблю #гуляшки #выходныеспапойэтокруто #мамаама #дваждымама
The Count Down Begins – 24 DAYS! 
Top 5 Teams and Individuals that earned bragging rights for this week. If you want your name listed next week, you know what to do!! We have done a great job so far but have a long way to go to reach our goal. 
#GigisPlayhouseATL2019
#GigisPlayhouseRoswell2019
#Downsyndome 
#DownsyndomeAwareness
#T21
#GenerationG
#Atlanta
#Georgia
#RockThe21
#T21FunRun
I get asked a lot what type of feeding therapy Asher does and how it actually helps him eat. Asher gets feeding therapy because he can’t always drink from an open cup and he also has a lot of sensory issues with foods . He won’t try it if he doesn’t like the texture , look, smells or even the color sometimes. 🤦🏻‍♀️So during a session, his amazing Speech therapist will make him more comfortable by making the food fun and interesting and because of that , we have gotten him to try a few foods he never would have before! I’m very hopeful that french fries won’t be the only thing he consumes on a daily basis 😂
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I actually just added a new video about his ST and feeding therapy on the YouTube channel !Link in my bio❤️
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#downsyndrome #upsyndrome #downsyndromeyoutubechannel #theupsanddowns #downsyndromechannel #vlog#trisomy21 #theluckyfew #nothingdownaboutit #specialneeds #Ashersdownrightperfect #blessed #nothingdownaboutit #t21 #downsyndromebeauty #downsyndromerocks #downsyndromelove #mystory #t21rocks#toddlersofinstagram #instatoddler#myliferocks #inclusion #notdisabled #differentlyabled#feedingtherapy#youtube 
#thisisdownsyndrome#therapy#speechtherapy
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من حلاتك ما يسمونك الجميلة ..
كل من حولك ينادونك بـ شيخة الزين 💗
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لمى _ شيخة الزين وعطر المكان .
🌸 ما شاء الله تبارك الله 🌸
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Frederico ❤️em Atividade externa para potencializar de maneira funcional a aprendizagem e autonomia: Ida ao supermercado trabalhando noções de cuidado e observações durante o trajeto( obstáculos na calçada, atravessar rua, leitura de placas, etc) e, no mercado , foram explorados os rótulos com a identificação das letras e números e a autonomia durante todo o processo de escolha do que comprar e como realizar o pagamento. Q ttA com @miriamsfreitas  #T21 #sindromededown #cepec #drzanmustacchi #todoamorenvolvido #SD #estimulação #genética #pediatria #psicomotricidade #robertamustacchi #fisioterapia #t21rocks #cepec #confiança #todoamorenvolvido #direitododeficiente #vocepodetudo
#trissomia21 #cromossomo21 #inclusão #t21sindromededown #fonoaudiologia #terapiaocipacional #psicologia #odontologia #coisalinda #nutrição #sobreoamor #autonomia #independencia #diainternacionaldaT21
So comfy, and so fun!!! I love my new shoes, thanks Megan 😙👌💛💙 @teaganscloset .
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#shopperfectchaos #shopsmall #shophandmade #worlddownsyndromeday #downsyndromeawareness #t21mommy #t21 #trisomy21 #momlife #advocatelikeamother #4sammypoo
E hj foi dia de fisio e fono, e também dia de colocar a bandagem para fortalecer a musculatura. Tia Guta me deixou com a boca cor de rosa.
#trissomia21 #cromossomodoamor #t21 #maribaby #marisophie
Part II... I arrived at the hospital with 4cm, while laying in bed trying to control the contractions my body started like pushing for it self i didnt even want to, i remember telling my husband “please get the nurse i feel like i want to push” he went to get her and i heard her saying “shes only at 4cm” she then came to my room opened up my legs and my baby’s head was already trying to come out. The nurse rushed my husband to put the gown on and rushed me to the maternity ward 💖 i literally gave birth with only the nurses, the gynecologist came and Aliah was already out. They handed her to me and she was covered in poop 💩 I learned after that it was meconium. They cleaned her and after that the neonatologist came in. #downsyndrome#theluckyfew#changingthefaceofbeauty#t21#trisomy21#nothingdownaboutit
Ver a independência e autonomia da Manuela me enche de gratidão ao universo por colocar tantas pessoas maravilhosas nas nossas vidas... como eu sempre falo pra vc filha: “você é linda” “você é inteligente” “você é capaz” e “ você vai ser o que quiser” ❤️ #amor #inclusão #eunaovejodiferença #downsyndrome #sindromededown #revistacrescer #revistapaisefilhos #amorsindromededown #t21
Hey Y’all be sure and snag a copy of my book, Kelly & the Great Pinewood Derby! Help spread Down syndrome awareness today by purchasing a book for yourself or a friend. Link in bio! #FreeSongDownload
Tomorrow is the one year anniversary of Fletcher’s open heart surgery, and this morning I’m sitting here reflecting and relishing in how far he’s come. I’m so proud of this kid ♥️
Ognuno può esprimere le proprie #capacità e vivere l'#opportunità di un #lavoro soddisfacente, in questo caso anche buono!
A Buongiorno Regione della #TGR Calabria l'esperienza di BuoniBuoni della Associazione Gli Altri Siamo Noi di #Cosenza che ha creato un laboratorio di dolci e biscotti "inclusivi", nel servizio voci e volti che vi faranno scoprire "perché i nostri sono prodotti ad alto contenuto di #felicità". Guarda il video
https://t.co/efghn8iqCX?amp=1

#sindromediDown #trisomia21 #t21 #inclusione #lavoroinclusivo #dasapere #cucina #food #goodnews #downsyndrome
Our Longman’s crew getting stock for the pop vending machines! Next time you step into Longman’s Kia or Chrysler make sure to purchase a pop! All proceeds go towards The Centre for Dreams! @longmans_markham_kia
Amigos, 
Hoje estive com algumas mães na Prefeitura de Taubaté ,  protocolando um requerimento para que as terapias multidisciplinares da Policlínica Infantil, volte a ser pelo menos semanal.
Hoje essas crianças estão passando quinzenalmente e nós sabemos que não surti efeito necessário.
Assim como elas , outras famílias estão passando pela mesma situação, e o ideal seria que todas fossem até a prefeitura protocolar esse requerimento.
Então peço a vocês que compartilhem e marquem os pacientes que vocês conhecem, que passam pelo atendimento da policlínica infantil ,para eles protocolem também esse pedido.
Juntos somos mais fortes ! 
Grata.

#sindromededown#t21#estimulacaoprecoce #terapia#taubate#valedoparaiba
Pilates first with @blogilates then some weights.  My workout buddy and my daughter inspire me keep moving forward and do the things that bring us joy and good health.  Who is your inspiration? @hannahsam5 #t21 #downsyndrome #fitness #fitnessover50 #stressrelief #nurture
2019.2.20
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ムスメさんはじめてのお誕生日✨
いろんなお祝いごとは週末にゆっくりやるとして😌
今日はひとまず写真を撮りました📸
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幼稚園の親子会の日だったので朝からお出かけ。
そんななか、おともだちからたくさんのおめでとうメッセージを頂きました✧
こんなふうに、嬉しい日を一緒に喜んでくれるひとが居ることに、とてもしあわせを感じて、陽気もあいまってポカポカな気分✨
幼稚園の親子会のママ達にも、おめでとう、と声を掛けてもらえて嬉しかった︎な☺︎✌︎︎
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という事で、せっかくなので振り返ってみる。恐ろしく長いですよ。
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1年前の今日は、雪の予報だったのに降らず、穏やかな日でした。
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さらに遡り、妊娠6ヶ月の頃。
赤ちゃんの様子が見られるワクワクのエコー検査の日。
でもその日は、とってもエコーが長くて、お腹が冷えひえになっちゃうくらい検査技師の人が念入りにチェックしてる。
なんかあるな……。
そう思ったら案の定、
赤ちゃんの心臓に異常がありNICUのある病院でないと出産後の赤ちゃんが危険かもしれないです。出産後すぐに手術になるかもしれません。
と、そう言われ、その時は確定診断は出来ないけど、ファロー四徴症かも、と言われました。
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夫氏と色々調べたけれど、
調べたところで何も出来ないし、
とにかくまずは無事に産んで、それからは現代の医学を信じるしかない!
そうお互いに励ましあって、
とりあえず赤ちゃんの心臓のことは気にし過ぎずに、出産までの日々を満喫したのでした。
もちろんその時に、ダウン症の4文字もよぎったけれど、ほかの特徴は出ていなかったし、
あんまり悲観してなかったな。
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出産後。
思ったよりスルッと出てきて、産声も元気で、ひと安心。
思ったよりゆったりと抱っこもできて「元気そうでよかった!」と思った。
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けど、その数時間後……ね。
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「3人の医師が確認しましたが、
ダウン症候群に間違いないと思います。確定検査しますか。」
と言われ、
まさか心臓の他にもなんかあるとは!と頭が真っ白に。
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医師が出ていってから、夫氏に
「ちょっと、泣いてもいいかな」
と抱きついて泣いたのを覚えてる。
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でも、なんで泣いたのかな?
今思うと、びっくりした!!っていうのが大きかった気がする。
そもそもダウン症についてなんて、あんまり知らなかったし(敢えて知ろうとしてなかったし)、なんだかよくわからなかったから、悲しいとかそういうネガティブなことを思う知識が無さすぎた!
ただ、正常ではないんだ、という衝撃、が一番近い感情だったかも。
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で、そのあとはとりあえず産後のあれやこれやでバタバタして、
病院の人も特にフォローとか無く😅
夫氏も会社へ行き。
一般の病室に移され、NICUの説明などなどされる。
元々、NICUには入るのわかっていたので、そこは特に動揺せず。
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ただ。
搾乳がキツかった……。
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赤ちゃんにおっぱいを飲ませるために、直母はできないので絞ってくださいと。
で、母乳指導室(メデラや哺乳瓶が置いてあるところ)に連れていかれ、ここで搾乳して、採れたらシリンダーで吸い取って持ってきてね、と。
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とりあえず、メデラをおっぱいにあててすこーすこーってやるんだけど、最初だから、まあ出ない。
そうこうしてるうちに、赤ちゃんを抱いた女性が次々と入室。
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みんな、赤ちゃんを愛おしそうに抱きながら、おっぱいをあげる練習をしてる。
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わたしひとりだなー。
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なんとなく、俯く。
すこーすこー。
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赤ちゃんの、泣き声。
ママの、あやす声。
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で、気づいたら涙が溢れてた。
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ここで泣いてたら、ほかのママ達に何事かと思われる。
泣き止まなきゃ。
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そう、思えば思うほど、次から次へと涙が溢れて、止まらなくなって、
俯いて嗚咽を噛み殺すので精いっぱい。
搾乳器あてたまま、しゃくりあげる。
なんで泣いてるのかもよくわからない。
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パニックパニック⚡️
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そこへ、様子を見に来た看護師さんが異変に気づき、慌てて隣に腰かけ背中をさする。
すぐに、わたしを立たせて、退室。
「配慮が足りず、すみませんでした…」と。
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その後も、普通に過ごしているのに、
突然、しゃっくりが突然出るみたいに、
わーーーーーーっと涙が止まらなくなる時があって、いつもそんな時は頭の片隅で冷静な自分が、
「なんで泣いてるの?悲しい?悔しい?辛い?嬉しい?」
って聞くんだけど、どれも違くて。
ああ、名前の付けられない感情ってあるんだな、と初めて実感しました。
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あー、懐かしい!
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あの産後の5日間は、
なんというかとっても貴重な体験をしました。
きっとホルモンバランスの問題もあったんだと思うなー。
あんなに混乱したの初めて。
でもあれが、母親になった自分の、一番最初の変化ね。
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長くなったので、続きは土曜日のpostで。
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#ダウン症
#ダウン症ガール
#両大血管右室起始症 
#downsyndrome
#downsyndromelove 
#downsyndromebaby 
#todayisfirstbirthday 
#t21 
#trisomy21 
#21トリソミー 
#japanesegirl 
#1歳
#siblinglove #t21 #nothingdownaboutit❤️ her protector
Noche de fiebre día de sueño profundo 😔 #sindromededown #sindromedewest #t21
先週のまこさん🎶
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随分久しぶりの投稿になってしまったわ〜😅
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実はママさん、気管支炎が酷くて咳と熱のダブルパンチをお見舞いされています😵🤒😵🤒
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まこさんは大丈夫です🙆‍♀️👌🙆‍♀️👌
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①ビデオ撮ってのリクエスト頂きましたので、何するのかな〜と思ったら、こんな感じ🤣🤣🤣
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②いつものコンビニに突然登場した、ビッグサイズのバーガーグミ🍔しかもboxが3つも仕入れてありました😆1つ1,500w‼️150円😵高い〜🤔
②一度は食べてみたくなった私たち親子は、1つずつ買って食べてみました〜。1段ずつ味が違ってました。何味だったか……説明が難しい🤣🤣🤣赤とか黄色とか緑の味……🤣🤣🤣
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④まこさんが保育園生の頃、ママさんが頑張っていた韓国語クラスの同窓会がありました〜😍全員で10人以上だったのに、ほとんどの皆様完全帰国で世界中にお帰りになりました☺️残されたのは4人。先生は左から2番目。パパさんがこの写真を見ながら、誰が先生か分からないって言っていたけれど……本当にそうかも。先生は今年63歳って仰ってた😮全くそんな風に見えないわ〜😃ビックリです‼️やっぱり日々運動だわ〜〜。あたしもアンチエイジング、考えないと〜😁😁😁先生はヨガを6年位されているそう。わたしも運動続けようっと😃😃😃
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⑤2/16(土)午後5:00のまこさん♪
この日はパパさんが日本から帰ってくるので、空港にお迎えに行ってきました〜🤗本当は、家で寝ていたかったママさんですが……朝起きた瞬間から、凄い気合い入ってる人がいて、「良し‼️airport いこ‼️」ていうのを30回以上聞きました🤣🤣🤣
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夜遅くに到着だから、何とか、午後8時頃のリムジンバスに乗ろうと思っていたのに、午後5時にスタンバったまこさんでした。ジャンバーはまだ早いと思ったから脱がせたら、ありったけのジャケット4つ全部着ていて、2人で爆笑でした🤣🤣🤣そんなに行きたいならね、もうね、行くしかなかったんですよ。
ママさん頑張って出発しました。
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⑥リムジンバス🚍乗って爆睡中💤
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⑦空港で……待って待って待ちくたびれました😅🤣😅🙃
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⑧待ちくたびれて、まこさん、独り言を大きい声で話し出すは、スーパーヒーローになりきるわ、テッコンドウを始めてしまうわ.....ゲートの端から端まで探検し始めるわで……ママさんヘトヘトになりました🥺🥺🥺
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⑧踊るまこさん🕺を観て、我慢できなくなって遂に釣られてしまった少女😍😍😍可愛いダンスでした😍💃😍💃
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⑩最後は、テッコンドウをしているところ。
まさか、まさか、足があのヒモの上には上がらないだろうとタカをくくってしまったママさん。甘かった😱😱😱足が上がったら、挟んだ形になって、右のポールがまこさんに倒れてくるというハプニングがありました〜🙀もう遊ばせてはなりません🙅‍♀️🙅‍♀️🙅‍♀️
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長文失礼しました〜😅😅😅
ここまで読んでくださった方々、
ありがとうございます😊
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まこさんは2/15で🌸春休み🌸を迎えています〜。
早いなぁ〜。3月から、5年生(日本では4月から6年生🤩)になります😊😊😊
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これからもどうぞよろしくお願いします🤗
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#ダウン症のまこさん🎶 #ダウン症 #メガネ男子 #downsyndrome #downsyndromelove #downsyndromeawareness #downsyndromeisbeautiful #nothingdownaboutit #nothingdownabouthim #heisable #heisperfect #downrightperfect #t21 #t21love #t21awareness #t21journey #チーム21 #チーム21親バカ大会 #海外で子育て #海外で障がい児子育て #韓国で子育て #韓国で障がい児子育て
When did my baby go from teeny tiny to a full blown toddler 😩 I can’t believe how grown she looks here. My strong willed diva! 💜💕 #upsofDowns #toddlersofinstagram #t21 #happy #love #sahm #changingthefaceofbeauty #chubbycheeks #momlife #babiesofIG #extraSpecial #theluckyfew
Por que hoje eu estou de vestido ✨✨
Madrinha vai postar fotinhos aqui dia sim dia não.
Já estou tomando mamadeira e aprendendo a deglutir certa de 20ml a 35ml, uhuul tudo no seu tempo!!!
Como diz minha mãe "língua por que sou metida mesmo" @perlacristinasena
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#downgirls #downprincess #down #cromossomodoamor #cromossomo21 #cromossomosfelizes #trisssomiado21 #trissomiadoamor #lorenasena #lorenafez7 #vitoriaemdeus #promesadedeus #t21
Ainda sobre o dia dela: 
Adorei cada detalhe! A simplicidade me encanta! 😍❤
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Bolo lindo e super gostoso da @arquitetadoce pq ñ pode faltar pra comemorar esse dia especial. Já faz parte da nossa life! 😉😊🎂 .
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#Kayliefadinha #trissomia21  #CoraçãoSaltaDoPeito #t21 #sindromedoamor #sindromededownsim #cromossomo21 #cromossomodoamor #sd #pqoamornãocontacromossomos  #47cromossomos #qualadiferença  #downsyndrome #trevodequatrofolhas  #downsyndromelove #downsindromegirl 
#Deus #obrigadaportudo #criancasespeciais #minibloguersdown
"Um aplauso pra você que quando perde uma batalha, levanta a cabeça e diz: Ainda não acabou, a luta continua..."
Uma excelente quarta amiguinhos!!!😍😚
#GlendaPrincesa #CromossomoDoAmor #1RazãoaMaisParaAmar #T21 #MiniBlogueirinha #MiniDigitalInfluencerDown #MeuDiaADia #
Repost @the321roadtrip
・・・
Miles thought he was playing with bubbles, but the whole time we were doing therapy. 😉 we started oral motor therapy at a very young age around 5 months, and we still are doing it. My little cutie pie.
Papai: me segura, pq a mamãe quer me levar para fisioterapia. 
Não estou gostando da ideia de sair de casa, ainda estou com sono!!!
🙃🙃🙃🙃🙃🤗🤗🤗🤗
#cromossomosmaes 
#cromossomodoamor
#cromossomo21 
#T21 
#sindromededown
We woke up to snow in SWVA this morning! ❄️☃️
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비록 오늘 영유아검진에선 
모든게 1등 그래프아래로 미달이었지만
아직도 5키로에 머무르고있지만
아직도 넘쪼꼬미이지만
그래도 
오늘 배만닿게 슈퍼맨자세도하고 
아빠치킨먹을때 뚫어져라쳐다도보고 입맛도다시고
느려도 울애기 조금씩크고있구나......
오늘도 크느라 수고했어 우리딸♥️
입좀..다물고자자 ㅋㅋㅋㅋ
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#영유아검진1차 모조리1등🤭괜찮아 예상했었어
#느려도 결국다한대! 
#다운증후군#다운천사#t21 
#막내딸#셋찌#딸#사랑해 박해별..🙃
O prazer que emana da finalização de um trabalho concluído!

#artesvisuais #artesplasticas #downidos #artedeincluir ##t21 ##trissomia21 #sindromededown #cromossomos21 #cromossomodoamor
Quem ama um banho põe o dedo aqui ☝🏻🤣 #sindromededown #downsyndrome #downsyndromelove #t21 #trissomia21 #trissomiadoamor #cromossomo21 #cromossomodoamor
Fotos que nos llegan... Ignacio disfrutando junto a su familia en el campo y en la playa 🐄⛱🍹
#fundacioncomplementa #sindromededown #downsyndrome #t21 #complementaenvacaciones #jovenescomplementa #familiascomplementa #vamospormas #súbetealaautonomía
ブンバボン…私が大好きで、ゆーたんによく踊ってみせていたら、今日初めてニヤニヤして手をブンブンと振ってみたりしてた😳👏
それなのに、よしお兄さんは卒業なのね…😭私が寂しい…😭
ブンバボンも変わっちゃうのかな…録画しておかなきゃ😭😭😭
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ゆーたんはこうしてテーブルの上のものをあさるようになり、段差でつかまってビョンビョンと跳ねてます…💦
立つよりもハイハイを頑張ってしたほうがいいとよく聞くので、どうやってハイハイ促したらいいかPTで聞いてみよう…
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お散歩から帰ってきて、リビングにおろしたら、なぜかエアロビ始めたゆーたん💡しかも、私をすっごい見つめながら…👀🤣なんだそれ🤣
しかも、そのポーズなにげに私はプルプルするけども…😅ゆーたん楽しそう…
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スタバ、サクラシリーズのやつみると、春だなーって思う🌸そしていつもグッズほしいなーと思う🌸
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#ダウン症 #21トリソミー #t21 #ダウン症ガール #1歳 #スターバックス #スタバ #スタバさくら #春だね
Решила рыжику своему челку подравнять... рука сорвалась, и мы получили новую стрижку. Правда, криво со всех сторон, но и Анна - не идеальная модель, спокойно усидеть не может ни секунды. Сфотографировать-то тоже удалось не сразу, все норовила в камеру заглянуть, проверить, хорошо ли вышла.
Такие вот у нас развлечения, пока дома сидим болеем.
#мобильнаяфотография #жизнь #нашибудни #синдромдауна #синдромдаунанеприговор #синдромлюбви #солнечныедети #особенныйребенок #плеватьнахромосомы #t21 #семья #дети #моясемья #russia #moscow #children #family #sindromededown
One year ago today we went for our first scan with Willow. We found out at the end of the scan that she had too much extra fluid at the back of her neck.. Before even confirming 100% what was the cause of all the extra fluid or if it was just nothing at all to worry about, we were ushered into a room and handed a ton of awfully outdated, poorly worded and biased leaflets on “Genetic disorders” along with leaflets about termination.. Shockingly 90% of confirmed Down syndrome diagnosis results in a termination in the UK, the outdated leaflets alone are terrifying and don’t put expectant parents minds at ease with a real insight to the reality of life with a baby / child with Trisomy 21. 
I now understand why parents of these magical babies advocate so hard, we are simply trying to wake the world up to just how amazing and worthy our little ones are, so hopefully one day everyone knows that a Down syndrome diagnosis is nothing to fear 💕
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#upsyndrome #blogger #downsyndrome #downsyndromeawareness #downsyndromebaby #wouldntchangeathing #theluckyfew #shouttheirworth #lifeisbetterwithyou #worthy #iamable #warrior #specialneeds #babygirl #advocatelikeamother #nothingdownaboutit #nodowndays #t21 #inclusion #motherhood #honestmotherhood #awareness #dsawareness #blogger #joyfulmamas #ultrasound #babiesofinstagram #perfect
Hola! Hoy queremos hablar un poco de la discapacidad intelectual. En esta foto estoy con Maria y Juani. Tenemos 3 años. Los tres somos amigos porque nuestras mamis se conocieron gracias a nosotros 👌😊 y nos juntamos muy seguido a jugar y compartir. Nuestras mamis hablan mucho a cerca de nuestra condición y comparten las experiencias y conocimientos que tienen mientras nosotros hacemos travesuras, jugamos o nos peleamos por un juguete, o nos reímos mucho compartiendo, jugando pelota, muñecas, carritos, aprovechamos a comer golosinas y disfrutamos mucho! Somos niños igual que todos y hacemos las mismas cosas. Lo unico que hace la diferencia es que en nuestro aprendizaje vamos mas despacio que un niño sin discapacidad intelectual. Por ejemplo no corremos con la rapidez que lo hace un niño de tres años, pero sabemos correr, no tenemos tanta agilidad o rapidez para subirnos en los juegos pero subimos y bajamos, nos columpiamos y resvalamos, saltamos,  no decimos oraciones completas pero decimos palabras y hacemos señas para darnos a entender, podemos poner atención y obedecer cuando nos hablan o llaman la atención, lloramos y hacemos berrinches igualito que todos, si nos dan un crayon pintamos y hacemos rallas, circulos, sabemos las canciones y las cantamos y bailamos, no a la perfección pero comprendemos y nos expresamos,  estamos en la edad de querer demostrar que podemos hacerlo todo solitos y no dejamos que nadie nos haga las cosas. Comemos solos, nos podemos poner los zapatos solos, estamos dejando el pañal y podemos hacer en el baño, nos gusta aprender, conocer, leer, jugar, explorar, y muchas cosas mas, si todo un poco mas despacio pero lo hacemos. El Síndrome de Down no nos define, solo nos hace diferentes en algunas cosas, pero somos igualitos que los demás! Amamos igual, nos enojamos igual, disfrutamos igual. Entonces cuando veas a un niño que va mas lento en su aprendizaje, ayudale, apoyale, enseñarle porque va a aprender y lo vas a disfrutar tanto como el. Gracias amigos por leernos y  compartir. Un mundo diferente es un mundo mejor para aprender de todos! Besos 😘❤ #sindromededown #downsyndrome #t21 #theluckyfew #t21rocks #dsawareness #SD #love
32 секунды любви.
К тем, с кем мы работаем. К тому, что и как мы делаем. 
Наше безграничное Спасибо. 
Тем, кто с нами был всегда и тем, кто рядом только появился. 
Вы наше всё! Слышите?
#ОВЗ#ОграниченныеВозможности#Логопедия#Дефектология#t21#аутизм#логопед#дефектолог#алалия#дизартрия#солнечныедети#аутизмпобедим#ЗПР#ДЦП#счастливыедети#СДВГ#МирРавныхВозможностей#БезграничныеВозможности#ПомощьДетям#БезГраниц#ЗвездочкиНаЗемле

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